After getting lost once, Alison called her husband in tears, fearing that she would never overcome her illness. She shares with Joel Chua how she found the strength to move forward by taking responsibility for her journey.
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The first sign was innocuous. On a family trip in 2012, Alison mistakenly called guacamole -"Guatemale". Her family laughed it off. “Any time a word jumbled up, we would say ‘Haha, Guatemala,’” Jamie, 27, Alison’s daughter, recalled with a laugh. “It didn’t occur to any of us that it might be a symptom of something.”
But Alison insisted there was something amiss and after MRI and PET scans, she finally found the answer to her symptoms: Primary progressive aphasia, a type of dementia that predominantly affects speech and comprehension. Choking back tears, Alison says she thought she had more time to deal with the intensity of the disease.
I was crying and screaming ... I thought, okay, this is it. Just throw myself into the highway and finish it. Because really, nobody can help me.Jamie in particular, made an extraordinary effort to learn how to adapt and stay connected to her mother. They even created a non-verbal communication method where a specific touch would indicate the level of pain Alison felt.
Young Onset Dementia Aphasia Mother And Daughter Business Collaboration A Letter To Myself
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