The Colorado board’s choice of drugs to review elucidates one of the thorniest questions it must wrangle with: Would lowering the price tag for rare-disease medications lead manufacturers to pull o…
, have said payment limits could hurt innovation and limit access, stoking panic among patients that the drug might no longer be sold in Colorado.
State officials contend that the high cost of prescription drugs puts them out of reach for some patients, while patients worry that they’ll lose access to a life-changing therapy and that fewer dollars will be available to develop breakthrough medications.in other states poised to undergo similar exercises, what happens in Colorado could have implications nationwide.
The rare disease affects fewer than 40,000 people in the U.S., including about 700 in Colorado. That means research and development costs are spread across a smaller number of patients than for more common conditions, such as the millions of people with heart disease or cancer.
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