Karen Sincerbeaux: Help pass the National Plan to End Parkinson’s Act, Sen. Romney

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Karen Sincerbeaux: Help pass the National Plan to End Parkinson’s Act, Sen. Romney
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“More and more people are being diagnosed with Parkinson’s, and the cost to our communities is staggering,” writes Karen Sincerbeaux. “Our resources are currently limited and — even as a healthcare professional — it has not been an easy system to navigate.

More and more people are being diagnosed with Parkinson’s, and the cost to our communities is staggering.

It took over two years of continual visits to the doctor and a barrage of tests to finally get a diagnosis. I was consumed with crushing fatigue, visual difficulties, loss of smell, difficulty walking, brain fog, struggles with balance and coordination, stomach pain, chronic constipation, stiffness, joint pain, tremors and repeated falls — one resulting in a concussion. I was continually anxious — at times panicky and filled with depression.

I am passionate about doing what I can in my lifetime to make a difference in the lives of those with Parkinson’s and to those at risk. Through support groups and therapy, I have met the most beautiful people who have become my Parkinson’s family. I would be lost without these resources and support. Continual accommodations are needed to function in the world because Parkinson’s easily strips you of your ability to enjoy life.

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