I’ve Seen Wars and Epidemics Unfold. But Now That I Have an Immunocompromised Partner, the Coronavirus Makes Me Truly Scared
Now with the lockdown, I can lay my anxieties to rest. Neither of us will be leaving the house anytime soon. At least until groceries run low.Aryn Baker's husband takes eight different medications, four times a day. One is a powerful immunosuppressant, another is an anti-malarial that may help in COVID-19 care.my husband started complaining of low energy, then a tingling in his feet and hands. His fingers swelled up like sausages, and a few weeks later they curved into inflexible claws.
There is no cure for scleroderma, but immunosuppressants, along with an arsenal of steroids, anti-inflammatories and, weirdly, a common anti-malarial, can slow its progression. Not long after his diagnosis, T’s doctor told him that while life expectancy with scleroderma is low, those who made it past five years could expect a reasonable quality of life, with constant monitoring. T asked him if that meant he would be able to go off the medications, or if his energy would return.
The four years since T’s diagnosis have revolved around regular visits with the gastroenterologist, the pulmonologist, the cardiologist, the ophthalmologist, the rheumatologist and the psychiatrist. Twice a week, he meets with a physical therapist who keeps his hands from reverting to the claws characteristic of the disease. He greets by name the staff at the hospital where he has gone three times in as many years to patch bleeding capillaries in his stomach wall—another symptom of the disease.
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