Metachromatic leukodystrophy is an inherited condition that affects one in 40,000 in Britain. Read more at straitstimes.com.
Losing mental acuity and motor control, including the ability to walk and talk, are conditions commonly associated with the elderly who battle dementia.
The medical prognosis is grim, Joey will progressively lose cognitive and motor skills, and develop dementia. He will probably not live beyond the age of seven, British tabloid The Sun reported. Ms Katie Walton, Joey’s mother, said she sought medical advice after noticing her son had begun suffering growth deficiencies and had difficulties walking, a motor skill he had picked up after his first birthday.“When we saw the physiotherapist, Joey had lost the ability to sit up too, so knew something was wrong.”
The group, set up by parents who had infants with MLD, said most children with late-infantile MLD die by age five, but often much sooner. Joey is a patient of late-infantile MLD, having experienced growth and development typical of other children his age until he was around 18 months old. PHOTO: NICOLA FENTON/GOFUNDME.COM
“There is a misconception that dementia only affects older people… we need to do more to dispel this myth,” said Dr Janet Carter, an associate professor of old age psychiatry, at University College London, who led a 2022 study on young onset dementia.
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