Struggling to stay alive: Rising insulin prices cause diabetics to go to extremes

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Struggling to stay alive: Rising insulin prices cause diabetics to go to extremes
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All people with Type 1 and some with Type 2 diabetes need insulin, but regular price hikes make the drug difficult to afford for the uninsured.

that even though drugmakers' "list prices" for insulin have surged, their "net prices" have grown at a more modest rate. The list price is how much the drugmaker charges. The net price is money the drugmaker gets after fees, discounts and rebates to wholesalers or pharmacy benefit managers.

Novo Nordisk says its insulin net prices declined at double-digit rates in 2017 and 2018 because of rebate demands.Newton, Massachusetts, resident Deidre Waxman has good prescription-drug coverage through Medicare. "I send it to friends who are in dire need," Waxman says. "These are people who would die without insulin."Erin Clark for USA TODAY

People who struggle to pay are “more in the middle,” Lipska says. They don’t qualify for Medicaid, the state insurance plan for low-income residents, and some earn too much to qualify for patient-assistance programs. Insulin was too expensive. The uninsured Redding, California, resident could not afford the cost of a drug that had more than tripled since the early 2000s.

She barely had enough energy to make it through classes at Shasta Community College. Vision in her right eye, stabilized this decade from an operation, began to worsen because she could not afford to take insulin as prescribed. She is blind in her left eye. Pharmacy benefit managers started to counter pharmaceutical industry's pricing power. As these middlemen gained more clout, they began to demand higher rebates. Drug companies raised prices by amounts that are slightly less than what pharmacy benefit managers demanded.

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