A young woman in the UK is fighting an NHS hospital to resume care and pursue a clinical trial in Canada for her rare disorder.
, which is advocating for the patient, argues her case is different than Gard's because she is conscious and able to communicate and argue in her defense.
"This is my wish. I want to die trying to live. We have to try everything," she told clinicians, according to court documents. The girl's family described the long battle with the hospital as"a year of continuous torture" for them. In court this week, a judge determined the teen"is able to communicate reasonably well with her doctors with assistance from her mother and, on occasion, speech therapists." Two psychiatrists assessed the teen was capable of making decisions about her future care for herself.
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